Consumer Health: Genetics

Developing and sustaining genetic and genomic initiatives in clinical and laboratory practice, education and advocacy.

The American Society of Human Genetics is the primary professional membership organization for human genetics specialists worldwide.

SERGG is a network of genetics and newborn screening providers in Alabama, Florida, Georgia, Louisiana, Mississippi, North Carolina, South Carolina, Tennessee, Puerto Rico, and the US Virgin Islands.

Network includes more than 1,200 disease-specific advocacy organizations, as well as thousands of universities, private companies, government agencies, and public policy organizations.

A national support group for individuals and families with chromosome deletions, rings, translocations, duplications, and inversions.

Consumer-friendly information about the effects of genetic variations on human health.

Developed by the National Human Genome Research Institute.

Timely and credible information to translation of genome-based discoveries into public health & health care.

The Genetic Testing Registry (GTR®) provides a central location for voluntary submission of genetic test information by providers. The scope includes the test's purpose, methodology, validity, evidence of the test's usefulness, and laboratory contacts and credentials. The overarching goal of the GTR is to advance the public health and research into the genetic basis of health and disease.

Designed by the Office of Rare Diseases Research (ORDR) and the National Human Genome Research Institute (NHGRI) to help people find useful information about genetic and rare diseases.